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What to expect.

If you need to be admitted to hospital, this may have been planned in advance or may occur on a more urgent basis. Your first point of contact will be the CF team, who will arrange your admission for you.

York CF

Ring us on:  01904 725601

Text us on:   07816 330 902

Hull CF

Ring us on: 01482 622495

Text us on: 07471 978 990

Admissions are organised into side rooms to avoid cross-infection. These are based on ward 34 in York and ward 500 in Hull, although occasionally in an emergency people are admitted through the acute medical unit, SDEC (Same Day Emergency Care unit) or in Hull via Emergency Department. Your care will be coordinated the multidisciplinary team: doctor, nurse, physiotherapist, pharmacist, dietitian and ward staff, with input from other specialities as required. There is in free NHS WIFI access in every room.

Ward 34 at York Hospital is on the 3rd floor, and is accessed from the main corridor via stairs or lift.  Ward 500 is at Hull Royal Infirmary and is on 5th floor and also accessed via stairs of lift. 

At times of acute illness, it is very important to maintain calorie intake, and so fridges are available in every room to allow you to keep drinks and snacks fresh. There are also special menus with high calorie options, and a range of snacks available in addition to standard menus.

We also appreciate that it can be very difficult to keep up exercise while in a side room. Physiotherapy advice will be available, as well as exercise equipment which can be installed in the room.

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Physiotherapy during an admission

This is what you can expect from the CF physiotherapists during your admission.

We will see you within twenty-four hours of your arrival in hospital. This is usually the same day as you arrive but may be the next day if you arrive on the ward in the late afternoon. If you are very unwell then we will see you as soon as possible and the on call physiotherapists may see you if you are very unwell and admitted out of usual working hours.

At admission we will go through a full assessment with you. This may include:

  • Talking with you about what has brought you in
  • Talking with you about your routine at home & any things going well or problems with the routine
  • Clinical tests like lung function, taking sputum samples and listening to your chest
  • Asking you questions about whether you have any problems that are common in people with CF like joint or continence problems
  • Checking your physiotherapy routine to clear your chest and any exercise that you are doing
  • Checking your inhaled/nebulised medications including any devices and your technique using them
  • Discussing with you what you want to get out of the admission and planning your treatment with you
  • Discussing our assessment with the rest of the CF team so that they know about any problems

At admission, during your stay and at the end of your stay

We will aim to see you twice a day although some of these physiotherapy visits will be with the respiratory physiotherapists rather than the CF team. There may be times where you or we feel that twice a day visits aren’t needed. 

During your stay we can:

  • Check and, if needed, change your physiotherapy for your chest and let you know about any new treatments/devices available
  • Help you with doing your chest physiotherapy if needed
  • Offer you the chance to exercise in the gym area or to have exercise equipment in your room
  • Check your nebuliser and inhaler medications and equipment, make sure that you can use them without any problems and let you know about any new treatments/devices available
  • Test any new inhaled medications with you to make sure that they are okay for you to take and that they are useful for you to take
  • Refer you to a specialist physio if you need treatment for any joint, muscle, posture or continence problem
  • Point you in the right direction for advice if you are having problems that we don't directly deal with (for example work problems, etc)
  • Monitor how things are going and work with the rest of the CF team and you to make sure that you get the best treatment possible

We will make sure that you are seen before you go home and will:

  • Talk with you about how your stay has been
  • Talk with you about your routine at home & any changes that have been made
  • Provide you with a treatment chart detailing your home routine if you think that this would be useful for you
  • Carry out repeat clinical tests like lung function, taking sputum samples and listening to your chest to check how well you have responded to the treatment
  • Check the physiotherapy to clear your chest and exercise that you are planning to continue with at home
  • Look at your nebulisers and inhalers and make sure that you can use them without any problems
  • Make sure that you have been referred for any further physiotherapy that you need for problems with joints, continence, etc
  • Make sure that we let the rest of the CF team know what we have done during the admission and what has been planned for home
  • Make sure that you know how to contact the CF team if needed before your next appointment