Information for people living with CF

Who are we?

Physios

We are a Physiotherapy team consisting of 5 Physios providing the CF physio service across York and Hull.

Physiotherapy for people with Cystic Fibrosis in York

What does the CF physio service offer?

We work with the rest of the CF team to help you with different areas of your care. These include:

  • Keeping your chest clear (airway clearance)
  • Managing any sinus symptoms
  • Exercise
  • Medication, particularly your inhaled treatments
  • Treatments such as oxygen and non-invasive ventilation
  • Helping to prevent or to treat continence problems (leaking urine)
  • Helping to prevent or to treat musculoskeletal problems (poor posture, joint problems, injuries, etc)
  • Helping you to manage your treatment around other things in your life
  • Being there as someone to talk to

To do this we aim to see you at every visit you make to the CF unit.

We also invite you for a longer review once a year as part of your annual assessment. This gives us time to 'fine tune' your treatment and to do additional tests such as an exercise test.  Check out the downloadable leaflets about physiotherapy for people with Cystic Fibrosis and related topics below.  We have also added some YouTube clips which may be helpful.

Musculoskeletal and continence issues

We know that some peope with CF experience problems with posture, muscle and joint pain and problems with leaking urine especially when coughing. We have two physios, Heather Harrison and Ceri Willis, who are specialist in these types of problems and who have completed extra CF training. At clinic, we will ask you if you would like to see them for an assessment and advice or treatment. We will aim for this to be offered at least once a year to prevent problems and more often if you tell us about problems that arise.

Developing the CF physiotherapy service

We're keen to continue improving and developing the CF physiotherapy service:

  • To give you a physio service that suits you and gives you what you need
  • To make sure that the physio service meets all the standards set down by the Cystic Fibrosis Trust and other organisations who produce guidance (see the download bar on the right to read these standards)

In order to do this we need you to get involved.  Tell us what you want, what works well, what doesn't, what's missing, etc.  We have very thick skin and will not get upset or irritated with you if something we do doesn't work for you.  If you don't tell us then we can't make the service right for you. You can contact any of the Cystic Fibrosis team or catch one of the physios for a chat at clinic.

Standards that we work to

Right now across the UK, there are around 6,500 people in need of an organ transplant, including around 150 children and teenagers. On average three people die every day in need of an organ transplant because there just aren’t enough organ donors.

Register here

Fundraising

We are always amazed and extremely grateful when people go out of their way to raise money for cystic fibrosis services. Some people are motivated by a family member or friend living with CF, and some people have heard about the disease in the press and offer to help.

Find Out More