Information for people living with CF

Who are we?

pharmacist

We are a pharmacy team consisting of 2 pharmacists, 1 based at York (Dimah Sweis) and 1 based at Hull (Nicki Bush).

What you can expect when you see the CF Pharmacist

We work with the rest of the CF team to help you specifically with aspects of your care relating to oral, intravenous or inhaled medicines.

When you see us, we will be asking you how you are getting on with your medicines and treatments. We are keen to hear about the successes that you have experienced with your treatments and what is working well for you.

We will encourage you to use every opportunity to discuss anything you want about your medicines. Please do not be afraid to tell us about any changes to your medicines especially if you have stopped taking/ inhaling treatments because you can’t see the point or perceive any benefit. We are on hand to support you to make informed decisions and balanced judgements about your medicines so that you are able to achieve the best possible positive outcomes. We will work closely with the rest of the CF team to resolve any issues you raise and to make adjustments where needed.

Whether any medication-related issues arise in the community, at home or in hospital, we will do our best to resolve any ongoing medication-related problems that might crop up along the way. We will be looking at your treatment regimes in detail, monitoring for effectiveness, adverse effects and effects some drugs can have on each other. We will keep you informed about any new treatment developments that are suitable for you.

documents-158461_640Policies, Guidelines and Standards of care:

CF trust standards of care, 2011

Pharmacy Standards of Care, November 2011

NICE guidelines 2017

Local Standard Operating Procedures

Local Policies

Right now across the UK, there are around 6,500 people in need of an organ transplant, including around 150 children and teenagers. On average three people die every day in need of an organ transplant because there just aren’t enough organ donors.

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Fundraising

We are always amazed and extremely grateful when people go out of their way to raise money for cystic fibrosis services. Some people are motivated by a family member or friend living with CF, and some people have heard about the disease in the press and offer to help.

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