Information for people living with CF

Who are we?

Dietetics

We are a dietetic team consisting of 2 dietitians, 1 based at York (Kate Powell) and 1 based at Hull (Joanna Donaldson).

What can you expect when you see the CF Dietitian?

diet-1135819_1280We will weigh you and make sure we have an up to date measurement of your height so we can calculate your Body Mass Index (BMI).

We will ask you about your appetite and what you are currently eating and drinking.

If your need to take pancreatic enzymes we will discuss with you how effective they are and help you adjust your dose to the foods you eat.

If you need to take vitamin supplements we can give you information about the best time of day to take these, and give you more detail on why they are important.

If you need to gain or lose weight we will support you in making dietary changes to achieve this.

If you are struggling to maintain your weight, we can talk to you about tube feeding, and support you in deciding if this is something that would be right for you.

If you do have a tube feed, we will arrange training for you and your family so you can independently manage your feeds.

If you develop CF related diabetes we will liaise with the diabetes specialist nurse and help you manage your diet and insulin.

Appointments

While we attend clinics and annual assessment to monitor your progress throughout the year, we are also very happy to see you at times other than clinic, or speak to you on the phone. You can contact us at any time;

Jo Donaldson (Hull) 01482 622495

Kate Powell (York) 01904 725269

documents-158461_640Policies, Guidelines and Standards of care:

CF trust standards of care, 2011

Nutritional Management of Cystic Fibrosis. September 2016

NICE guidelines 2017

Local Standard Operating Procedures

Local Policies

Right now across the UK, there are around 6,500 people in need of an organ transplant, including around 150 children and teenagers. On average three people die every day in need of an organ transplant because there just aren’t enough organ donors.

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Fundraising

We are always amazed and extremely grateful when people go out of their way to raise money for cystic fibrosis services. Some people are motivated by a family member or friend living with CF, and some people have heard about the disease in the press and offer to help.

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