Information for people living with CF

CF Information 

Here you can access information related to Cystic Fibrosis condition, some of the materials are produced by the team on a number of aspects of CF care; as well as info materials from other sources such as CF Trust. You'll also find we've made a list of links to other websites that you may find helpful.

If there are any subjects you've wanted information on but not been able to find out about, let us know. Please remember that the information leaflets are designed to support not replace advice from the CF team. If you see a treatment that you think may be useful to you, let us know and we can give you all the information and education that you need to use the treatment.

If you are a clinician and wish to use any of our leaflets in your practice we are happy for you to do so but please acknowledge the York Hull Adult CF Service as author and please let us know.

LET'S START BY ASKING - What is Cystic Fibrosis?

Right now across the UK, there are around 6,500 people in need of an organ transplant, including around 150 children and teenagers. On average three people die every day in need of an organ transplant because there just aren’t enough organ donors.

Register here


We are always amazed and extremely grateful when people go out of their way to raise money for cystic fibrosis services. Some people are motivated by a family member or friend living with CF, and some people have heard about the disease in the press and offer to help.

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