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CFInformation for people living with CF

Financial support- Benefits- Advice

Benefits, financial support, advice

Cost of Living Crisis Support- last update 17/11/2022

The CF trust and other charitable organisations are offering financial support to help with the cost of living crisis. There are several different grants available:

  • Home essentials fund – grant of up to £375 towards the cost of an essential homecare appliance; such as fridge, freezer, washing machine, dryer, cooker, bed and mattress.
  • Cost of living fund - one-off grant of £225 to people in low-income households. This will usually be split over three months, with a payment of £75 each month.
  • Emergency grants£150 to support people when they are in immediate financial need.
  • Health and well-being grant - grants are up to £350and help to assist with buying items or services that will have a positive impact on quality of life.
  • Holiday grants - up to £300towards the cost of holidays, trips and short breaks.
  • Water sure scheme – places a cap on water bills and can help towards the cost of water bills.

For anyone vulnerable, including people living with a chronic health condition, there is also the priority service register: https://www.britishgas.co.uk/priority-service-register

This is a free service with benefits such as ensuring you are on the best tariff, advance notice of power cuts and support in case of debt.

There is also help available to pay off energy debt and travel expenses to clinic appointments. Please let us know if you would like help applying for any of these.

There may also be benefits you are entitled to that you are unaware of. We can carry out a benefit check if you would like us to, to see if you are eligible for any extra income support.  You can also do this using the CF trust benefits entitlement checker or by speaking to Sangeeta Enright, the benefits and welfare advisor at the CF trust. She can be contacted via e mail at helpline@cysticfibrosis.org.uk or by phoning 0300 373 1000.

 

If you have any questions about this information you can contact us on:

Hull 01482 622495 or text 0747197899

York 01904 725601 or text 07816 330 902

Kind regards

Your CF team

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HBBI 2022

'Award winners can receive a grant of up to £5000 to boost their business idea, as well as access to expert support and guidance.' CF Trust - Helen Barrett Bright Ideas Awards (cysticfibrosis.org.uk)

Citizens advice bureau 

This service provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities www.adviceguide.org.uk

Advice for young people

Government advice for young people on a range of issues (work, health, housing, activities, etc) www.direct.gov.uk/en/YoungPeople/index.htm

City of York council

 www.york.gov.uk

Fuel Bank Foundation

https://www.fuelbankfoundation.org

The fuel bank foundation

Organisations that arrange special days for people with CF

Cystic Fibrosis holiday fund provides financial assistance for UK children and young people with CF up to the age of 25 so they can take an invaluable break www.cfholidayfund.org.uk

The honey rose foundation provides a memorable day for people who have a life-threatening illness www.honeyrosefoundation.org.uk

The willow foundation The Willow Foundation is the only charity of its kind providing special days for seriously ill 16 to 40 year olds throughout the UK www.willowfoundation.org.uk. You can also read more about Willow Foundation here.

Willow logo with strap PURPLE