My name is Rebecca Thomas, and I am the lead consultant for Cystic Fibrosis (CF) services in York. I was appointed in 2007 to replace Dr Hunter, and I am responsible for the medical care of adult patients with CF in York hospital.
We run outpatient and inpatient services here in York. I work as part of the multidisciplinary team (MDT) to manage the care delivered to people with CF who access our service. The MDT includes specialist CF nurses, dieticians and physiotherapists, as well as pharmacy, psychology and social work input and associated non-respiratory medical team members. I also work closely with the Leeds CF team, and an adult CF consultant comes from Leeds to the York clinic twice a year. As an adult service, we work hard with the local paediatric services to try and make transition as smooth as possible for young adults living with CF.
In my background, I qualified in Bristol and then spent my early years getting a good grounding in the NHS in Bristol, Birmingham and Norwich. Next I began my registrar training in Leicester, where I completed my research degree (Doctor of Medicine or MD) with funding from the University of Leicester and the Wellcome Trust, and worked as part of the respiratory and cystic fibrosis teams there. I moved up to Yorkshire in 2003 and completed my training in a number of Yorkshire Hospitals, including Leeds and York.
I think Yorkshire is a fantastic place to live and work and I love being here for many reasons - I've tried to celebrate a few with some photos on the front page and look forward to seeing yours too!
My aim is to continually improve the service we offer to you and to give you the best local service we can.
Prof Alyn Morice
Deputy Centre Director
Prof Alyn Morice
Professor Morice attended Cambridge University and St George’s Medical School before House jobs and SHO training in London. He then undertook research into asthma therapy at St Mary’s Hospital followed by Lectureship at Cambridge where he first looked after patients with CF. He then moved to Yorkshire, firstly in Sheffield, setting up the adult CF unit and now is Professor of Respiratory Medicine and Head of Cardiovascular and Respiratory Medicine at the University of Hull. His main interests are cough, and reflux disease both of which are very common in CF.
CF Clinical Lead
Hi I'm Tracey your specialist physio. I qualified as a physio in 1999 and, while doing my junior physio job, worked for a few months at the adult CF centre at Wythenshawe. I decided that this was something I wanted to do in the longer term and so got a job at the Royal Brompton hospital in London where I spent a few years rotating around different respiratory areas including lots of work with children and adults with CF. I then moved to a senior physio job at the Leeds adult CF unit for seven years. During my time at Leeds I completed a masters degree in the management of long term health conditions and did some research about how well people manage to take nebulised treatment. I also started lecturing at Leeds Metropolitan university; teaching physios in training about oxygen, nebulisers, etc.
I moved to York in October 2010 to lead the adult CF physio service. I am chair of the ACPCF which is a group of physios who all work in CF. I lecture at different meetings about CF physio and about the research I have published. I have also been involved in creating guidelines about physio for people with CF. I have been back at university and have completed a course in non-medical prescribing; this means that I can prescribe some of the treatment which you are on or starting. The CF team hope that, by more of us being able to prescribe your treatment, you will have fewer delays in starting or getting treatment and that you will have more members of the team to go to for medication advice.
I have been working as a physiotherapist for 19 years now, 17 of which have been within acute respiratory care. I have always had a special interest in the care of people with Cystic Fibrosis and for the past 14 years worked in a South East London hospital providing stand-alone care to adults with CF. I was able to develop in and outpatient physiotherapy services as part of the wider CF team whilst working alongside paediatric CF teams for transition and building strong links between the two teams.
I relocated to Yorkshire with my family last year and was fortunate to become part of such an experienced and proactive CF team here at the York Hull CF Centre. Within CF I have particular interest in the management of the upper airway and exercise so can often be heard chatting about SNOT (sinonasal outcome tests) and CPETs (cardio pulmonary exercise testing)! Outside of work I play in a racketball league and love to be outside, exploring the countryside.
Hi I’m Kirsteen, one of the Specialist Physiotherapists in the York Hull CF Centre. I qualified in 1991 from Queen Margaret College in Edinburgh as a Physiotherapist. Whilst training I got the bug for Respiratory Physio and this was further built on in my Junior Rotations and led me to specialise into Respiratory Care; working at Hull Royal Infirmary, Castle Hill Hospital, Wythenshawe Hospital (Manchester) and also within the East Riding Community . I have worked in a variety of Specialities within Respiratory Care including Intensive Care, General Surgery, Medical, Cardiology, Paediatrics, Cardiothoracics, Cystic Fibrosis and Cardiac & Pulmonary Rehabilitation gaining valuable experience. This has allowed me to provide a variety of approaches to treatment and develop services that are patient centred. I completed my Masters’ Degree in 2006 in Cardio-Respiratory Rehabilitation which included research regarding the outcome of an exercise programme for people with Respiratory conditions. I am also a Non-Medical Prescriber which means I can aid in treatment decisions around medication. I have also completed a number of other Respiratory Courses as I believe we have to keep learning to ensure best possible care is always provided. I regularly provide teaching sessions for GP practices, other health care providers/professionals and universities.
I joined the York Hull CF Team in January 2019 and I am based at Castle Hill Hospital, but do work across all sites, so I may pop up when you least expect me! I have a particular interest in inhalers and also exercise, as getting this right helps boost our treatment regimens and wellbeing for all.
Although I only intended on being ‘down south’ for 6 months, I have now been south of the border for 28years. I have lived mainly in the Hull and East Yorkshire area in this time and love the people and the area (although I do still miss home). I love to get out in the great outdoors and enjoy hiking from day walks to several weeks. I like a challenge and have taken part in Muddy Obstacle courses ranging from 5km to 12km raising money for various Charities.
CF Clinical Lead
Hello, my name is Tanya. I have been working as a CF Nurse Specialist for nearly 20 years, and although I am always still learning, I have gained a wealth of experience during this time. Prior to this I spent a few months working in Acute Medicine and Rheumatology then 9 years in the Accident and Emergency Department in Hull following which I became a Sister in the AAU department, again, for a few months. I have also worked as a Respiratory Nurse Specialist at Castle Hill Hospital caring for patients with all respiratory conditions.
I became a Registered Nurse in 1989 and I have a Batchelor of Science in Health Professional Studies and am an Independent Prescriber. In 2002 I undertook the specialist Cystic Fibrosis Course – Managing the care of children and adults with Cystic Fibrosis. I have been employed by the Hull and East Yorkshire Hospitals Trust for 33 years. I also have qualifications in teaching both for in hospital and establishments of Higher Education.
This role and service has been developing throughout the time in which I have been in post. I am very proud of the Cystic Fibrosis Service and what we have achieved. Working as a joint service with York has only enriched ensuring that all of our patients receive the highest standard of care possible.
Hi I’m Julie, I have been working as a CF nurse specialist at York teaching hospital for 3 and a half years. Before this I worked for 7 years as a deputy sister on the respiratory medical ward nursing in-patients with CF which is where I developed a keen interest in CF. I worked in cardiothoracic surgery for 9 years prior to this. I have a degree in nursing and nearly 20 years nursing experience.
I completed the Brompton course ‘the care of adults and children with CF’ 2 years ago and have trained to perform spirometry. I also have an interest in palliative care and have completed a degree module in palliative care. I have just started the non-medical prescriber’s course which I am due to complete in July this year. I hope that by becoming a prescriber you will have more members of the team to go to for medication advice and for prescriptions which should make it easier to get your medication.
Hi my name is Mel, I had a late start to my nursing career and completed my nurse training as a mature student. Prior to this I worked for the Inland Revenue for 16 years.
I qualified with a BSc in Nursing in 2011. My first 4 years was spent working as a Community Staff Nurse. During this time I gained a wide range of clinical skills and completed courses in wound care & end of life care amongst others.
I joined the Hull Adult Cystic Fibrosis team in January 2016. Over the last 3 years I have learned so much and continue to learn new things on a daily basis. I have now completed my mentorship course and ARTP/BTS full certificate in spirometry. I am also the Infection Control Link Nurse for Hull.
My aim is to complete the ‘Managing the Care of Children & Adults with Cystic Fibrosis’ course later this year & work towards commencing the non-medical prescriber’s course.
Hello my name is Debbie, I joined the Hull Cystic Fibrosis team as a nurse specialist in January 2013.
I completed the ‘Managing the Care of Children and Adults with cystic fibrosis’ course in October 2016. I continue to develop my knowledge of Cystic Fibrosis every day. I have attended a number of CF conferences in support of my role.
I came to the CF team from Ward 5 /rhdu respiratory ward (previously ward 21 at Castle hill) in 2013 after being there for 5 years. In this role I gained a keen interest in the cystic fibrosis patients and their treatments. I also worked in the respiratory high dependency unit with NIV (non-invasive ventilation) which expanded my level two care experience. I bring a wide range of medical and respiratory experience to the team.
Prior to this I worked at Bridlington District hospital on an acute medical admissions unit with long and short stay patients of various medical conditions. This is where I began my nursing career in 2003 when I joined Kent ward as a staff nurse and progressed to a senior band five. I have over 15 years nursing experience.
Specialist CF Nurse
Hi I’m Rebecca, I joined the York Cystic Fibrosis team as a nurse specialist in July 2018 and am developing my knowledge of Cystic Fibrosis on a daily basis. I have attended a number of CF conferences since commencing the role and am due to undertake the ‘Managing the Care of Children and Adults with cystic fibrosis’ at the Royal Brompton Hospital in September 2019. I bring a wide range of knowledge and experience to our CF team at York. I began my nursing career in October 2009 when I joined ward 34 as a staff nurse. In this role I cared for adult patients with respiratory conditions, including cystic fibrosis. After 18 months I transferred to the Accident and Emergency department at York where I worked for 7 years, progressing to the position of Deputy Sister. Following A&E, I looked to return to respiratory medicine and became a Nurse Specialist within the sleep services, specialising in continuous positive airway pressure (CPAP) and non-invasive ventilation (NIV) before joining the CF team.
Specialist CF Dietitian
Hello, my name is Joanna Donaldson-Smith and I am the Band 7 Dietitian for the Hull Adult Cystic Fibrosis Service. I qualified in July 1995 at Leeds Beckett University (previously called Leeds Metropolitan University). Initially I worked as a Dietitian in Birmingham covering respiratory medicine and diabetes. I moved to Hull in February 1997 to be a senior respiratory dietitian. At this point I had a caseload of 5 Adult Cystic Fibrosis (CF) patients until Professor Morice started in the Trust when the caseload started to grow from there.
Over the years, while still working within CF, I have become highly experienced in many areas of dietetics including: critical care, upper GI and colorectal surgery, general surgery, gastroenterology, diabetes including maternal diabetes. All of this experience I can draw on to support the multi-faceted disease that CF is. Over the years I have attended a number of conferences to also deepen my knowledge base and experience. I am a member of the CF Dietitians Group which is a valuable national network for Dietitians working in CF.
Senior CF Dietitian
Hi, I’m Kate, I have been working in York for the last 2 years as a neurology dietitian, and worked at Hull Royal Infirmary before moving across to York.
I’m really pleased to have joined the CF team and have recently completed a masters module in CF.
I live in York with my family and a very badly behaved Labrador.
You can contact me by e-mailing firstname.lastname@example.org or on 01904 725269.
Hi, I’m Dimah, and I’m your CF pharmacist at York Hospital. I have been officially working with the CF team for just over 2 years, although I have been interested in CF and working closely with the team for many years. I am a CF pharmacist 2 days a week, and the rest of the time I work as the respiratory pharmacist at York Hospital. As a CF pharmacist, I try to ensure that you are on the best treatment that works for you, and try to resolve any issues that you may have around your medication. In a time when there are many new medications on the horizon, I try to keep you updated on latest developments and work hard to make the treatment available to you as soon as possible. I became a non medical prescriber in January 2018, which means that there is one more person in the team who will be available to make treatment decisions and get medications to you as quickly as possible.
I have a bit of an international background, and first qualified as a pharmacist in Jordan in the Middle East. Postgraduate research brought me to England where I did my conversion and qualified as a pharmacist in the UK in 2009. I have worked at York Hospital ever since. I love working with this team and in CF, and I have enjoyed meeting and getting to know many of you over the past few years. I am learning a lot about CF, and will be attending a course at the Royal Brompton Hospital on ‘Managing the Care of Children and Adults with Cystic Fibrosis.
Hello there, I’m Nicki and I have been working 2 days per week as the CF pharmacist based at the Hull site since joining the CF team in May 2018.
Up until then, I worked for over 25 years in various acute and general medicine specialties in hospitals and primary care organisations in the Midlands, the North West and the North East of England (West Bromwich, Derby, Sheffield, Liverpool and Hull). During my time in Liverpool, I was a Senior Lecturer in Pharmacology and Therapeutic at Liverpool John Moores University. In addition to an interest in CF, I also have an interest in Public Health and I am employed as a Public Health Specialist for Local Authorities in my remaining working time. Because I have been employed in many different parts of the healthcare system, I understand about the types of issues with medicines that people with CF might face from time to time.
I am really enjoying working with the CF team and getting to know CF patients attending the Hull site. I am continually learning about CF and learning about new treatment developments so that I can help patients to access and receive these where suitable.
My aim is to continually improve the quality of care I provide. I will be attending a course at the Royal Brompton Hospital on “Managing the Care of Children and Adults with Cystic Fibrosis” in September 2019 and I will be looking to become a non-medical prescriber in 2020.
Principal Clinical Psychologist
My name is Dr Jess Brown and I joined the cystic fibrosis team as a Principal Clinical Psychologist in November 2017. I did my clinical psychology training in Sheffield and worked in community services with children and families for several years before moving into Psychological Medicine here at York in 2015. My role was to develop the psychology aspect of the adult diabetes service here at York. During that time I also worked for some months with the paediatric cystic fibrosis team and am delighted to now be working across the adult and paediatric CF services on a permanent basis, for three days a week.
Support Time Recovery Worker (Social Support)
Research CF Physiotherapist
Hi I’m Katy. I qualified as a physiotherapist 14 years ago. I started working in respiratory care in 2009 and for the last 6 years specialised in the care of children and adults with Cystic Fibrosis working with two fantastic multi-disciplinary teams.
In February 2018 an opportunity arose to apply for a secondment researching adherence to nebulised therapy in adults with CF. I applied and was successful. ‘CF Healthhub’ is a tool designed to enable people with CF to manage their nebuliser treatment. I have been enjoying the challenges and different ways of working with people with cystic fibrosis that the role has brought and I’m looking forward to seeing how CF Healthhub continues to develop in the future to benefit the care we give to our patients.
Research and Paediatric CF Physiotherapist
CF Centre Project Manager