Information for people living with CF

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About respiratory problems

The British lung foundation The British Lung Foundation (BLF) is the only UK charity working for everyone affected by lung disease. www.lunguk.org

Asthma UK is the charity dedicated to improving the health and well-being of the 5.4 million people in the Uk whose lives are affected by asthma. www.asthma.org.uk

Support for you

The CF trust www.cftrust.org.uk

Youth health talk This is a website about young people's real life experiences of health and lifestyle. www.youthhealthtalk.org

Patient health information Comprehensive health information as provided by health professionals to patients during consultations www.patient.co.uk

The expert patient programme The Expert Patients Programme Community Interest Company (EPP CIC) provide and deliver free courses aimed at helping people who are living with a long-term health condition to manage their condition better on a daily basis  www.selfmanagementuk.org

Support for your family

Carers UK is a charity set up to help the millions of people who care for family or friends  www.carersuk.org

For siblings Sibs is the only UK charity representing the needs of siblings of disabled people  www.sibs.org.uk

Benefits, financial support, advice

The CF trust www.cftrust.org.uk

Citizens advice bureau This service provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities.www.adviceguide.org.uk

Advice for young people Government advice for young people on a range of issues (work, health, housing, activities, etc) www.direct.gov.uk/en/YoungPeople/index.htm

City of York council www.york.gov.uk

The Joseph Levy Foundation This website provides grants to people with Cystic Fibrosis who are undertaking further education and career development. https://www.jlef.org.uk/

Organisations that arrange special days for people with CF

Cystic Fibrosis holiday fund Provide financial assistance for UK children and young people with CF up to the age of 25 so they can take an invaluable break. www.cfholidayfund.org.uk

The honey rose foundation Provide a memorable day for people who have a life-threatening illness. www.honeyrosefoundation.co.uk

The willow foundation The Willow Foundation is the only charity of its kind providing special days for seriously ill 16 to 40 year olds throughout the UK.www.willowfoundation.org.uk

Exercise opportunities

Walk for life Walk4Life is all about helping people move and walking is a great way to start. Almost everyone can do it, anywhere, at any time, and it's free - you can just get out there and start walking. www.walk4life.info

Energise Energise is a sports centre for the residents of York and surrounding area. Includes a fitness gym, climbing wall, dance studio, indoor sports hall, outdoor pitches, new 25m pool, hydrotherapy pool, crèche, six-badminton-court Sports Hall, fitness classes and table tennis! www.better.org.uk/leisure-centre/york/energise

Sustrans (cycling) Are a leading UK charity enabling people to travel by foot, bike or public transport for more of the journeys we make every day. www.sustrans.org.uk

Social life and travel

European health insurance card www.ehic.org.uk/Internet/home.do

Tourism for all www.tourismforall.org.uk

The Cinema Exhibitors' Association Card Website www.ceacard.co.uk

Travel health www.travelhealth.co.uk

Medications

Medicalert www.medicalert.org.uk

The gene therapy consortium www.cfgenetherapy.org.uk

Asthma UK (good section on taking inhalers)www.asthma.org.uk/using_your_inhaler.html

Right now across the UK, there are around 6,500 people in need of an organ transplant, including around 150 children and teenagers. On average three people die every day in need of an organ transplant because there just aren’t enough organ donors.

Register here

Fundraising

We are always amazed and extremely grateful when people go out of their way to raise money for cystic fibrosis services. Some people are motivated by a family member or friend living with CF, and some people have heard about the disease in the press and offer to help.

Find Out More